Update

Hi everyone, i know its been a while since i updated. Its just hard writing on Skyla's blog. We had a fetal echo on the babies heart and our cardiologist told me that he is a boring baby. Boring to me is fantastic!! Means i have a healthy baby with a healthy heart. That made my day. Thankyou to everyone who voted on the names poll. But we still havent decided on a name. I do have it down to 3 though, only 1 from the list. I think now it will be out of LUCA, KYNAN or JAI. Maybe we will just wait til he is born then pic which one suits best. Its so hard deciding on a name. I have my next check up on thursday 5th Feb. Not sure if i am having another scan but i am having the Glucose test thing. I am hoping to discuss whether or not i can have a c section too. Thats what i really want anyways. If i have the c-section they will have to take me a week earlier i think. I am due May 9th. Mothers day is May 10th. I really want to be out of hospital by mothers day. Last mothers day i had my baby girl with me and we were in hospital. This mothers day i dont want to be in hospital, i want my little boy with me and Blake. We will go and see our Angel at her resting place.

February 13th is fast approaching. It will mean that my sweet baby girl has been gone 8ths. I lost my baby girl on Friday the 13th. Skyla was 8mths old to the day. Now on her 8mth anniversary its bloody friday the 13th again. I hate this day. Next month is also friday the 13th. I cant escape them. Then i have Valentines Day Feb 14th, my baby will have been dead longer than she was alive. 8ths and 1 day. It hurts so much. Im a bawling mess typing this. I cant hardly see through all my tears.

I miss you so much baby girl. The day you died, part of me died too. I wish i could hold you in my arms again, kiss your beautiful face. I would never let you go Skyla. I love you baby girl and miss you so much. Love mummy xoxoxox

What Name do you like best?

Just after everyones opinion on a few names i like. Not saying we will pick one of these as something else may come up. Out of them, there is one name that i really really like. Not saying which one though. There is a poll on the right. Please vote if you can. Thanks

Our little boy sent from our beautiful angel SKYLA

Hi everyone, well i had my 18wk Morph scan today and everything is fantastic. They got a good look at his heart and all looks good. The sub chorionic hemorrhage that i had seems to have disappeared which is a big relief. They checked to see if he had 2 collarbones, i know that sounds weird but Skyla only had 1. Well he has 2. And no CDH!!! I am so happy. They also did some 3D pics of our little guy today. I ended up taking a photo of them with my phone. I am only 18wks 5days but the 3D pics turned out pretty good considering how early i am. There is two pictures of his face and an awsome one of him kneeling. It looks really cool, oh and a picture just to prove he really is a boy. LOL. They also cancelled the fetal echo that was planned for tuesday 16th Dec and made an appointment for Jan 20th, i will be 24wks by then so the cardiologist should be able to get a good look then but as far as they were concerned today, everything is perfect. Yay.

The closer it is getting to christmas the harder it seems to be getting. I am really missing my baby girl so much. Next Monday is my birthday too. Last year i had my little girl here with me and she was doing so well. We were at the ward and she wasnt even on any oxygen. We were thinking we were going home. God how i miss her so much. We love you Skyla. Thankyou for looking out for your little brother. I cant Wait til he is older so i can tell him all about his beautiful big sister SKYLA. What a brave girl you were and how strong you were. He will be so proud. We all are. Miss you bubba and we love you so much. Keep looking out for us up there. Cant wait til i see you again. Love mummy. xoxo

A Star In The Sky

Just after we lost our beautiful girl, 2 of my best friends got us a gift. They told me and Joe about it the day we buried Skyla. It is her very own Star In The Sky. Here are the co-ordinates.

SKYLA MANAWA TEMAIPI,
Libra RA 15h 18m 38s D-13' 59'

Thankyou so much Jenni and Marissa

27TH November- A Big Day

Today was a really big day for us, and a hard one at that. We met with Skyla's Dr and social worker at 1pm to get her autopsy report. It was still Pulmonary Hypotension episode which caused her to arrest. Although they didnt find a syndrome or genetic problem they still think she did have one but just couldnt put a name to it.
Now onto our news. We are having a BABY!!!!! And a healthy one at that. We had a scan today. I am 16wks 5days. I am due May 9th which is one day before Mothers Day. The stomach and everything is exactly where it should be. Yay no CDH. I am so happy. They still have to check the heart out in more detail but so far everything looks great. Now onto the sex, GIRL or BOY. I asked them and they are 90% sure we are having a BOY!!!!!!!!!! Now all we have to do is come up with a name for our little man. I told Blake today that he is getting a little brother. He was happy but i know he really wanted a sister. The first thing he asked me was "Is he Healthy". Thats all we want. Then he gave me the biggest kiss and cuddle. I knew the baby had to be healthy especially with a big sister in heaven watching over us all. Thanks Skyla, we love you and miss you so much bubba. Thankyou for sending mummy, daddy and Blake a healthy bubby. We love you.God how i wish our little girl was still here to make our family complete. As the days pass, it doesnt get any easier. I miss her so much. Having a new bubby on the way is never gonna replace our little girl. I hope it does help to ease our pain a little.

Back at Sydney Childrens Hospital

Tommorrow me and Joe have to go back to the Childrens Hospital at Randwick to get Skyla's autopsy report off her Dr. Finally. We know she had a pulmonary hypotensive episode which caused her to go into cardiac arrest but her Dr wants to go through everything with us and give us the final report. I have known about this since last week and as much as i want to get this over with. Im a bloody mess. I just know i will probably be crying through the whole meeting. I am dreading it. My emotions are all over the place. I will let everyone know how it goes tommorrow and if they found anything that i may not know about. I also have some other news that i will tell you tommorrow once i get back from the hospital. I am hoping my news that i have to share will be good news. Please pray that it is.

Another CDH angel, Baby Gretchen Falhaber, born 12th Nov 2008 passed away 21st Nov 2008 Her CP is BabyGretchenFalhaber Please send some love and support to her family at this sad time.
Another CDH baby born, Johnathen Alexander born 18th Nov and placed on ECMO the following day. Please keep him and his family in your thoughts and prayers.

Heaven gets another Beautiful Angel

Reese Renee Kostjuk30/10/07 - 30/10/08
Heaven recieved another beautiful Angel on 30th October 2008 at 3pm
Reese was taken to heaven on her first birthday. Born on 30th October 07 with CDH. Spent her whole life in hosptial. A fighter til the end. Please pray for her beautiful family at this sad time.

Blake is doing the Guard Of Honour for the Rugby League World Cup Australia vs New Zealand game

Just a quick note, i have some exciting news about Blake. Tonight is the opening ceremony of the Rugby League World Cup and Blake's rugby league team has been chosen to be in the Guard of Honour for the Australia vs New Zealand game. We are so excited. What an honour. I will try to take lots of photos and update whan i can. Dont know if they will show him on the TV but he will be wearing his Hurstville United clothes which are blue and white. Photos to come. Keep a look out for him. Im sure Blake's little sister will be looking down and will be so proud of her big brother.

Our Angel Is Watching Over Us

On Monday 13th October, Skyla's Birthday, my mum and dad went down to our holiday house as we are getting new tenants for the house. On the Tuesday 14th October they headed off into town to do a few erands. To get into town they have to drive on the highway. On there way, they were doing about 90km p/hr when all of a sudden a car coming the other way spun out of control doing about 100km p/hr and right into them. They had no time to move out of the way. The car was ridden off as was the other car. They were both ok, thank god. My dad seriously thought that that was it. Their time was up. He cant believe they escaped with no injuries. The other driver was a 23yr old who escaped serious injury too. They were so lucky. Thankyou bubba so much for watching over nanny and poppy. You really are our guardian angel. Love you hunny. Miss you so much. Love mummy

Pregnancy and Infant Loss Day OCT 15th

Please remember our Angels today

Balloon Release Skyla's Ist Birthday

HAPPY 1ST BIRTHDAY SKYLA







Your family Skyla, we miss you so much bubba. We love you. Happy Birthday Princess




Your family back in New Zealand Bubba, They love and and miss you

My cousin Karen's kids Aimee and Brendan from Perth WA releasing balloons for our angel. Thankyou


My friend Amanda releasing balloon for our princess, Thankyou


Jen, Ryan, Shane, Jens mum, a family friend and Skyla's best friend Matilda releasing balloons for our princess, Thanks guys

This balloon release is from Babies in the Sky friend Vicky and her beautiful Angel Aubrey, all the way from Crown point, Indiana USA. Thankyou so much

HAPPY 1ST BIRTHDAY MY BEAUTIFUL PRINCESS

Today is your 1st Birthday SKYLA, how i wish it were different. We were meant to be having a beautiful party hunny, lots of presents, lots of fun and laughter, lots of babies and friends joining in on your special day. So far all mummy has done is shed tear after tear after tear. I miss you so much. I cant believe its already been 1 year. Its been 4mths since you left us. Thats already been half your life without us. Its not fair.
Yesterday we did a little balloon release for you at the cemetery because nanny, poppy, Aunty Tash and Zaya couldnt make it today. I hope you enjoyed your balloons. We were planning on coming out to see you today at 12pm but Blake has school today, 1st day back after the holidays so we will be coming to see you at about 4pm. Sorry we cant make it sooner. We will be bringing lots more balloons. I bet you and your little friends cant wait for more balloons. They are so much fun. Also some friends and family that couldnt make it have done there own balloon release just for you. I told them to take photos so mummy will put them up as i get them. You will love them. I hope that your friends and family have thrown you a big party in heaven my darling. I just wish we were there with you. I just want to hold you and kiss your beautiful face again. We are so sad without you. As i type this i can hardly see the computer through all mummys tears. Well i hope you have a good birthday today darling, im sure you will have lots of fun with your friends and i cant wait to see you when we get there. We love you baby girl. We miss you so much.
HAPPY 1ST BIRTHDAY PRINCESS!! LOVE MUMMY, DADDY AND BLAKEY XOXOXOXOXOXOXOXOX

Happy 1st Birthday
We wish we could see your beautiful face
We wish you were here today
We would laugh, play and sing Happy Birthday
Tearing the wrapping paper off your toys
playing with all the girls and boys
Just learning to walk, we'd see
But all these things aren't meant to be
You're spending your birthday in heaven above
So, all we can do is send our love
Release some balloons, take flowers to your grave
To celebrate your birth and the life they couldn't save
Try and try as they may
You're not with us today
We hope heaven throws a party so grand
And helps us all to understand
Today as we recall your birth, we smile
And be happy you were with us for a while
A life short-lived, gone too soon
We sing "Happy Birthday" as we send a balloon
We send it up and far away
In hopes it reaches you today
For with it we send a wish with love
Have a Happy Birthday In Heaven Above...

author unknown

Skyla's 1st Birthday, Balloon Release

In less than 1wk it will be my baby girls 1st birthday. Monday 13th October she should of been turning 1. I should be organizing a big beautiful party for her and buying her lots of beautiful presents. Its not fair. I miss her so much. The closer its getting to her birthday, the harder it seems to be. We have decided that we want to do a balloon release for Skyla. It will be on the 13th October at 12pm. It will be in the Karinya Children's section of Woronora Cemetery at Skyla's grave. As it is a Monday i know people may not be able to get the day off so feel free to come on Sunday if you like. We will be there about 1pm. To those people that are unable to attend, some people have mentioned that they might do their own little balloon release. I thought that was a fantastic idea. If you do that can you please take photos and send them through to my email please so i can put them up on the site. My email is krisgbee@hotmail.com . Thanks.

3 months Angel

Yesterday marked 3months since our beautiful little girl went to heaven. It is still so incredibly hard. It only feels like yesterday she was here. We miss her so much. I think about her nearly every minute of every day. The only good thing is that i know that she is happy now. Free from pain and suffering. We will always love you bubba. You are forever in our hearts. I hope you are happy up there Skyla. Love you and miss ya darlin.

Love mummy xoxoxox

Happy Fathers Day, Daddy

To My Daddy

A gift for you on Fathers Day,
What on earth could it be?
I know the gift you really want,
Is to once again, have me.
Or perhaps the gift of understanding,
To make sense of a senseless loss.

I'm sorry, my dearest Daddy,
But for those gifts, you must talk to the boss.
The gifts that I can give today,
Are memories, both sad and sweet.
From the touch of your hand on Mummy's tummy,
To my tiny little feet.

Remember the joy you felt inside,
When you found out you would be my Daddy?
The great big smiles upon your face,
You were over the moon, you were so happy.
Remember when you felt me move,
The wonder and love you'd feel?
Remember it today Daddy,
It just might help you heal.
Remember the little cuddles we had,
And the moments that we shared.

Remember my little nose,
And the colour of my hair,
I love you dearest Daddy, you know that this is true.
Just keep your memories of me alive,
And I will always live in you.

Author unknown



I love you daddy, I miss you so so much. I know that you came to see me today, with mummy and Blake. Thanks for my beautiful flowers.

Love your little angel
SKYLA MANAWA xoxoxoxoxoxox