Skyla's Results

Today i rang Skyla's pediatrician to see if her autopsy results were in. He told us the main reason she passed away was from a Severe Pulmonary Hypertension episode which then caused her to go into Acute Heart Failure. He said her Lungs were small but not small enough that they were incompatible with life. Her Lungs showed patches of infections but not from a new infection. They were still healing from her older infections. It showed that she didn't have severe reflux. Her Kidneys were fine but her Liver was very swollen but that would have been caused by her Cardiac Arrest because all her blood was rushing to try and save her brain and heart. We wont get the final report until September i don't think. It will go into alot more detail and we will be having a meeting at the hospital so they will go through everything with us then.
Today i made an appointment to go and see a councillor, don't know how it will go but i guess it couldn't hurt. Last night i really lost it. I was in bed watching TV and i just started bawling my eyes out. I must of cried myself to sleep because next thing i knew it was morning. I wish i could dream about her. Instead i re-live the day over and over and over. The worst day of my life. Friday 13th June 2008.

Prayers need for my friends baby ZAC. He is in ICU where Skyla was. He is a very sick little boy at the moment. He has Wiskott Aldrich Syndrome. He has No immunity and a blood disorder. Today he is meant to be having Heart surgery. Please send some prayers his way. His blog is http://zacruglesswas.blogspot.com There is a link to his site in babies blogs on the right.

Two More Angels In Heaven

The last few days have been tough. Life is just not fair. Two more CDH babies got their angel wings. I was following there stories throughout Skyla's journey. Baby Seth was born a week after Skyla had passed and little Daniel was 7mths. It is so heartbreaking seeing other parents going through what we went through. CDH is devastating. Life wasnt meant to be like this. With all the hard work of researchers, surgeons and critical care teams the mortality rate of CDH only has a survival rate of 50%. I cant wait til the day when there is a major breakthrough and no one has to watch their child go through so much pain and suffering. Some babies do survive this horrible birth defect, but some people including us have to suffer the loss of loosing a baby to CDH.

Baby, Seth Van Dyke, 25/06/08 - 16/07/08
www.caringbridge.org/visit/babyseth

Baby, Daniel Bradley Gallagher, 14/12/07 - 17/07/08
http://333daniel.blogspot.com

They were both two strong little boys, now ^angels^ in heaven with our little angel ^SKYLA^. I hope your having fun with your new friends hunny. We love you and miss you more and more everyday.

One Month Already

13/07/08 Today, it's been one month since you got your angel wings. It has gone so quick. You would have been 9 months old today hunny. It only feels like yesterday you were here with us. We miss you so much. I thought i was dealing with loosing you ok but the truth is darlin, i cry my eyes out everyday. I think of you all day everyday. Your all i can think about. I just want to be able to hold you, smell you, cuddle and kiss you again. I know that your not in any pain anymore up there in heaven, but i wish you were here with us, with your family, where you belong. We are lost without you. It just doesnt seem to be getting any easier. It seems to get harder everyday. We came to visit you today. Mummy and daddy bought you flowers. I hope you liked them. We seen that you had a visitor during the week. Someone bought you some yellow flowers and a pink teddy. The teddy was cute. I wish they left a note, as i have no idea who they were from to thank them. It was lovely. I hope your having fun up there baby girl. We love you and miss you more and more everyday.

Love mummy, daddy and Blake

Blake's Tribute to his Beautiful Sister SKYLA

Blake made this video for you Skyla. Mummy helped. Blake was so proud of you darlin. He misses you so much, we all do.

Love your big brother BLAKE

The Day Before You Became An ANGEL

These were the last photos i took of my beautiful little girl SKYLA MANAWA TEMAIPI. They were taken the 12/06/08. They day before we lost you. You were going so well darlin. Mummy hadnt taken any pictures of you and me in a while. Im so glad we took them that day. My last photo of you and me i was kissing you. The other photo its like you were saying goodbye. I miss you so much baby girl. Just remember we will always love you. You will be in our hearts forever. I hope you are watching over us up there. I cant wait til we see you again. We miss you

Love mummy, daddy and Blake
xoxoxoxoxoxoxoxoxoxoxoxoxox

SKYLA MANAWA TEMAIPI R.I.P