Skyla Manawa Temaipi 13/10/07 - 13/6/08

Skyla Manawa Temaipi 13/10/07 - 13/6/08
Click on pic of Skyla to go to beginning of her life story. Then scroll to bottom of page

Friday, November 13, 2009

About time for an update

Well sorry i havent updated in a while. WOW how time flies. Jai is now 6mths and doing really well. Blake has finished playing soccer on Saturdays. He did really well for his first year at soccer. I am so proud of him. He is my soccer star.

We ended up moving house in September to a much nicer place. Living area is much bigger but a very small yard. Luckily we have the park just up the road.

On October 13th we celebrated Skyla's 2nd Birthday. It was a sad day but but we made it through. We just went to the cemetery and released some balloons. I couldnt believe it had be two years since i had her and 16mths since i seen her beautiful face and held her in my arms. I am starting to get upset as i am starting to forget the way she smelt and felt. It is starting to scare me. I dont want to forget these things and it hurts so damn much! I just want my baby girl here with me and for her to be healthy. But at the same time i know if i still had Skyla i wouldnt have my beautiful baby boy Jai. Jai and Blake are what help me to get bye. Without them who knows what i would do. I do know that Skyla is looking out for her brothers from up there in heaven. How lucky are they to have their own special Angel watching over them. And what a special Angel she is too.

That night of Skyla's birthday Blake went and stayed at my mums and i was home alone with Jai. Jai had been well but awoke at 12am screaming his lungs off. This went on for over an hour and i couldnt stop him. He had a temp of 39.9. I gave him medicine but the screaming was really scaring me so i decided to take him to the local hospital. We ended up staying there til 7 in the morning and was told he had a lung infection and given antibiotics and told to keep up with panadol. He got worse that day. Screaming and couldnt get his temp below 38.8 so decided to take him to the childrens hospital where Skyla was. They are the best there. They did a blood test and his white cell count was at 26. that is pretty high but they couldnt find the source of the infection. They decided he needed to have a lumbur puncture. It broke my heart but they had to rule out everything. He was such a brave boy. Mummy was more upset i think. We ended up being admitted and he started iv antibiotics. Still to this day we dont know what was wrong but he improved quickly. We stayed from wednesday to friday. He even got his photo with spiderman!! I was glad to be back home and out of the hospital

Since then Jai has started sitting up all by himself, rolling all over the place now. He weighs 9kg and is getting so tall. It wont be long before his crawling i think. God help me!! LOL

Blake has been going pretty good a t school but hating it as usual. He is playing cricket for sport and loving it!! He had a little halloween party. He had so much fun. All the kids looked amazing.

Now i am just trying to organise what to get the kids for Christmas. It is so hard trying to decide on what to get them. Blake is especially hard to buy for. What do you buy a 9yr old that has everything?

Off to see Britney Monday night. My sister got me a ticket, thanks Tash. Just hope it will be good. Apparently its been pretty bad. So many are walking out of her concerts saying it is terrible. Oh well, will find out soon i guess. We have good seating too. Diamond reserve!! Row A so i think we will be pretty close to her!

I will try and keep updates regular. I know i always say that but this time i will!! Hope everyone is doing ok. Thinking of all our cherubs and sadly there are now too many more Angels. All the new Angel mummys and daddys are in my thoughts and prayers. xxx

Pictures of my beautiful boys!!!

Tuesday, October 13, 2009

Happy 2nd Birthday my beautiful Angel


Today is my sweet baby girls 2nd Birthday!!! 13th October 2009 and here we are alone without our baby girl. Its been 16mths since we said goodbye. And not a day goes bye that i dont think about my beautiful sweet baby girl.

Today we went to the cemetery to wish her a happy 2nd birthday. on our way we stopped off to get some balloons and flowers for our princess. The sun was out but a bit windy too. We brought Jai's bumbo chair with us so we could get pics of him and Blake at Skyla's grave. He was such a good boy. All smiles he was. We sang her happy birthday and released some balloons.

Happy Birthday Princess, i hope you had a good day today. I hope you had a huge party in heaven with Lilly and all your angel friends. Did you like your balloons. Im sorry that your tinkerbell balloon didnt make it to you. You see the wind really picked up and blew it straight into a tree. I was so disappointed. When Jai let go of his balloon it didnt want to leave. It stayed down low for a while but then all of a sudden it just took off and was gone. We miss you and love you so much darlin. I hope you are happy and have found peace. Love mummy, daddy, Blake and Jai xoxoxoxox

~ Happy Birthday Angel ~

As we wake up in the morning
and your not here to see,
we grasp for some reality...
that our dreams can never be.

We'll bake a cake & buy balloons,
we'll burn a candle too.
We'll play your music, look at pictures
and shed some tears for you.

We'll imagine what the day would bring,
if only you weren't gone.
You'd run and laugh, and jump about,
we'd sing the birthday song.

You should be here today,
excited as can be...
Sifting through the toys and wrap,
bursting forth with glee...

But God had other plans for you,
these plans, we'll never know.
Today, the candle burns,
...with no tiny lips to blow.

We'll do our best to make it through,
this day we meet with dread.
We'll do this all for you, my love...
on this road of grief we tread.

So on this day... my baby girl
You're birthday number two...
your in our hearts and in our thoughts we send our love to you.

Sharon Kivisto 4/2/99

My Birthday In Heaven

You’re wondering if I’ll celebrate
My birthday (way up here)
I know you’re missing me today
I feel your essence near.

God planned a special day for me
He told me with a wink
He’d ordered me a special cake
(It’s Angel food, I think)

I’m getting lots of hugs from God
He’s really good at that
And every time that I walk by
He gives my head a pat

Balloons will fill the streets for me
They float up through the clouds
And we have lots of clowns up here
That make us laugh out loud

There is a birthday carousel
Jeweled horses ride the wind
With music playing oh so sweet…
The magic never ends

I’ve made so many friends, you see
We laugh and play and sing
We ride our bikes and play jump rope
And sleep in Angel’s wings

We’ll have our cake and ice cream
And open gifts, surprise!
But we don’t blow out our candles here
Instead, they light the skies

Sharon Kivisto 4/2/99

Sunday, July 26, 2009

Maxton's Memorable Moments

The other day i recieved a parcel in the post. It was from Ashley Standifer, Angel Maxtons mummy. Ashley's son Maxton was also born with CDH. Sadly Maxton lost his fight March 21st 2009. He fought a couragous battle for 18days. Ashley recieved many gifts after loosing her beautiful boy. It is here she made Maxton's Memorable Moments.She decided to create special works of art in memory of all our precious CDH Angels. Here is a picture of what Ashley made in loving memory of my beautiful girl Skyla. Isnt it beautiful! Thankyou so much Ashley, i love it! It brought tears to my eyes when i seen it. Maxton would be so proud of his mummy!

Monday, July 20, 2009

Need Help

Hi everyone. I need help with my blog. I want to know how do i change my blog into a 3 column blog? I changed my background to a 3 column one but couldnt work out how to change the layout. I was worried id loose everything so i went back to a 2 column. Any ideas?


Saturday, June 13, 2009

One year in Heaven

Today marks 1 year since my beautiful little girl went to Heaven. this week has been very tough knowing that today would mean 365 days since i seen her beautiful smile, 365 days since i held her in my arms and got to kiss her sweet face. What i would do just to have one more day with her again. I miss her so much. My heart is broken in two. I wonder what she would be doing if she was still here. Would we still be in hospital. How would she be with her new little brother. She should be 20mths today, instead my beautiful little girl is in heaven. Its not fair. Why do we have to go through loosing a child. No parent should have to bury their child before them. I think about Skyla everyday. I know she is watching over us and sending angel hugs and kisses down to us. She has since blessed us with a healthy little boy. I worried about falling pregnant so soon after loosing my baby girl. I wondered if she thought i would forget her, but i realised Jai was meant to be. Everything happens for a reason and Skyla sent him to me. I know people say things happen for a reason but i will NEVER know why Skyla was meant to leave us. She fought so hard for 8 whole months and now she is in heaven with a new healthy body playing with all the other CDH babies that have also lost their lives to this horrible birth defect. There is also another Angel in heaven with Skyla. On May 17th i went to say goodbye to a beautiful little girl named Lilly. Lilly was Skyla's room-mate when she was in the ward. I got really close to her mum and nanna and we stayed in touch after loosing Skyla. Sadly Lilly had lost her fight to survive on May 18th 2009. She was a fighter, now an Angel in heaven with Skyla. Me and Lilly's mum think it was the girls plan all along. They were meant to be together, together forever.
Today was a hard day. I didnt really have a good sleep, was awake most of the night. In the morning i went and got Skyla a beautiful big butterfly balloon then we headed off to the cemetery. I thought it was gonna be just the family but there ended up being about 20 people. It was nice. We got her some beautiful flowers. Joe's mum said a few words.I shed too many tears then released her balloon. Hope you liked it baby girl. I hope you and Lilly didnt fight over it. We then all went off to the club for some lunch and now i am home and cant get my baby girl off my mind. I miss her so much. I love you bubba.

Its been a year since we said goodbye,you got your wings you chose to fly. I miss your smile, i miss your touch, i miss the way you smelled, I wish you could have met your brother, to have a chance to be your mother, hear you laugh and watch you grow, all these things ill never know. Forever loved, never forgotten. Miss you baby girl. Always in our hearts,

Love mummy, daddy, Blake and your baby brother Jai xoxoxoxoxox

Friday, June 12, 2009

Lots of cute pics

My little boy is getting so big. He has grown 7cm since birth unless they got his length wrong. Seems alot to me. His birth weight was 3670gm, now he is 5195gm.

Meeting Nanny and Koro from NZ

Jai got to meet his Nanny and Koro from New Zealand this week for the first time. They came over to meet him and for Skyla's 1yr Angel Anniversary which is tomorrow. Please think of us tomorrow as i am having a hard time again. Lots of tears shed this week. It doesnt seem to be getting any easier.

Saturday, May 9, 2009

My little man is finally here

JAI KEWA TEMAIPI arrived on Tuesday 5th May by c-section at 215pm weighing 3.67kg and 53cm long. Perfect in everyway. He is so beautiful.

Happy Mothers Day everyone. Today was hard without my princess, but i know Skyla is watching over us. Look at my gift from her, a beautiful healthy boy. Thankyou sweetheart, miss you so much.

Tuesday, April 28, 2009

The Countdown Is On, A little scare and a NAME!!

Wow, i am getting so close to meeting my little man. Only 9 more sleeps. I am booked for c-section on the 7th May. We have also decided on a name. His name will be


The 7th May also marks 1 year from when SKYLA had 3 cardiac arrests in 24hrs. They told me that day she wouldnt survive the night. I really tried to not have him this day but i didnt have any other choice but too. Or unless i wanted to have him on the 14th May. That would have made me nearly 41wks and there was no way i was going to go over. I am anxious enough as it is. So now that i am booked for the 7th, as hard as it is going to be i will try and make a happy day out of a sad. He may even decide to come on his own in the meantime. I guess i am going to be very emotional no matter when i have him anyways, Not having my little girl here with us. I miss her so so much. It is still so hard. I love you SKYLA and miss ya bubba but i know you are looking out for your little brother. Thanks darlin.

I had a little scare yesterday. I woke up at 430am and couldnt go back to sleep. At about 830am i was starting to worry as i didnt think i had felt him move. I got myself worked up so i rang the hospital. They told me to come in so they could put the monitor on him. After about 30min of monitoring him they werent really happy with it as they didnt see any spike in his heartrate and i still wasnt really feeling any movements. His heartbeat was fine though. They gave me some apple juice and got me to lay on my side. After that he decided to put on a performance and they were happy with what they saw. Cheeky little bugger he is already. Also too i have been really stressing out lately as it is getting close. I guess its only normal after loosing my beautiful girl. I wonder at times if its all in my head. I just want little Jai out now and safe in my arms. I cant wait to meet him. Anyways after he put on a little show they sent me home which was great. They gave me a kick chart so i can keep track of his movements.

On thursday 30th i have my next checkup and then Friday i have my pre-admission appointment. I will let you all know how it goes.

Thursday, April 9, 2009

A Parcel In The Post

I just wanted to say thankyou to Gil, Kaden Brown's mum. Kaden is a CDH survivor from Scotland. Click here to view his blog. Kaden was born in July 07. We have followed each others journey with CDH and kept in touch through our blogs and emails. Well the other day i recieved a parcel in the mail. It was a gorgous outfit and bib for my little man to be. Thankyou so much GIL. I love it. I will try post some pics soon.

PS, Gil should have had her new baby yesterday. Gil was booked in for a C-Section. I cant wait to see some pictures of your new little man. Hope all is well with mum and bub.

Baby Shower

On April 5th, my mum and sister Tash put on a baby shower for me. I was a bit nervous bout having one cause i was worried it would bring up memories of Skyla. Im so glad i had it though cause i ended up having a really great day. Thanks so much mum and Tash. I only cried once before everyone got there cause silly me brought up my beautiful princess. I hid it from them though. Well i dont think they new i cried. Oh well i guess they will know now. There was about 14 of us there. We played a few games and ate some great food. I got so many lovely presents. This time all blue. Thankyou so much to everyone for my presents and i hope you all had a great day. I know i shore did. Now all i need is my new little man. I cant wait. Just about 4weeks to go. I am still waiting on Tash to email me the photos so i can add them to this post. Check back later. Lots of photos coming. Thanks again mum and Tash for giving me a fantastic day. xxx

Monday, April 6, 2009

Blake's 9th Birthday

On March 28th it was Blake's 9th Birthday. We went out for dinner at our local RSL and after that was a school Bingo night fundraiser at the RSL. It was a good night. Blake won the lucky door prize, 2 games of bingo. I won 2 and my mum won 3. You could say that we cleaned up, lol. Towards the end we were too embarressed to say bingo cause we kept winning all the time. On the 29th which was a sunday, Blake had his birthday party at Bowling. He had invited 9 of his best mates. He had a great time. They played 2 games, then had hotdogs, nuggets, chips, drinks then ice cream. Although he didnt win, he had a great day and got lots of lovely presents. By the time it was over i just wanted to go home and sleep. I was exhausted. Im so glad i didnt have to clean up. But i guess that happens when your 34weeks pregnant.



PS. As you can see by the new heading of my blog, i have decided to just continue on with this blog. You can still read my beautiful girl's story by clicking on her picture at the top. I will no longer use my other blog.

Thursday, March 5, 2009

4D pics of my little guy

My little guy 30wks 5 days
Skyla at 30wks 4days. I think her little brother is gonna look alot like her.

Today i had my checkup. Everything went well. They were gonna book me in for a scan at my next appointment but they were able to fit me in today. I was happy, i got to see my little boy for the 2nd time. Boy he looks just like Skyla. He weighs in at 1574gms and is growing great. The only worry i now have is that during the scan the cord was right in his face. Too close to his neck for my liking. Other than that he is perfect and is gonna stay that way.

Thursday, February 26, 2009

Tuesday, February 24, 2009

Our new edition to our family

No i havent had bubby yet, about 10wks for my little boy to go, but i did get another baby. Blake got a 6wk old puppy. We were given her from our ex neighbors. Thanks guys. Me and Blake absolutly love her. Blake named her Roxy. She is a Golden Retriever. She is beautiful. She is huge!!! She weighs in at 5.9kg already. We got her yesterday. Today i took her to the vets for her 6wk needle. She even fell asleep whilst the vet gave her her needle. I will upload some photos of Blake and Roxy soon. I may even put one up of my pregnant belly. Well, we will see bout that one.

Tuesday, February 3, 2009


Hi everyone, i know its been a while since i updated. Its just hard writing on Skyla's blog. We had a fetal echo on the babies heart and our cardiologist told me that he is a boring baby. Boring to me is fantastic!! Means i have a healthy baby with a healthy heart. That made my day. Thankyou to everyone who voted on the names poll. But we still havent decided on a name. I do have it down to 3 though, only 1 from the list. I think now it will be out of LUCA, KYNAN or JAI. Maybe we will just wait til he is born then pic which one suits best. Its so hard deciding on a name. I have my next check up on thursday 5th Feb. Not sure if i am having another scan but i am having the Glucose test thing. I am hoping to discuss whether or not i can have a c section too. Thats what i really want anyways. If i have the c-section they will have to take me a week earlier i think. I am due May 9th. Mothers day is May 10th. I really want to be out of hospital by mothers day. Last mothers day i had my baby girl with me and we were in hospital. This mothers day i dont want to be in hospital, i want my little boy with me and Blake. We will go and see our Angel at her resting place.

February 13th is fast approaching. It will mean that my sweet baby girl has been gone 8ths. I lost my baby girl on Friday the 13th. Skyla was 8mths old to the day. Now on her 8mth anniversary its bloody friday the 13th again. I hate this day. Next month is also friday the 13th. I cant escape them. Then i have Valentines Day Feb 14th, my baby will have been dead longer than she was alive. 8ths and 1 day. It hurts so much. Im a bawling mess typing this. I cant hardly see through all my tears.

I miss you so much baby girl. The day you died, part of me died too. I wish i could hold you in my arms again, kiss your beautiful face. I would never let you go Skyla. I love you baby girl and miss you so much. Love mummy xoxoxox