Skyla Manawa Temaipi 13/10/07 - 13/6/08

Skyla Manawa Temaipi 13/10/07 - 13/6/08
Click on pic of Skyla to go to beginning of her life story. Then scroll to bottom of page

Thursday, November 27, 2008

27TH November- A Big Day

Today was a really big day for us, and a hard one at that. We met with Skyla's Dr and social worker at 1pm to get her autopsy report. It was still Pulmonary Hypotension episode which caused her to arrest. Although they didnt find a syndrome or genetic problem they still think she did have one but just couldnt put a name to it.
Now onto our news. We are having a BABY!!!!! And a healthy one at that. We had a scan today. I am 16wks 5days. I am due May 9th which is one day before Mothers Day. The stomach and everything is exactly where it should be. Yay no CDH. I am so happy. They still have to check the heart out in more detail but so far everything looks great. Now onto the sex, GIRL or BOY. I asked them and they are 90% sure we are having a BOY!!!!!!!!!! Now all we have to do is come up with a name for our little man. I told Blake today that he is getting a little brother. He was happy but i know he really wanted a sister. The first thing he asked me was "Is he Healthy". Thats all we want. Then he gave me the biggest kiss and cuddle. I knew the baby had to be healthy especially with a big sister in heaven watching over us all. Thanks Skyla, we love you and miss you so much bubba. Thankyou for sending mummy, daddy and Blake a healthy bubby. We love you.God how i wish our little girl was still here to make our family complete. As the days pass, it doesnt get any easier. I miss her so much. Having a new bubby on the way is never gonna replace our little girl. I hope it does help to ease our pain a little.

Wednesday, November 26, 2008

Back at Sydney Childrens Hospital

Tommorrow me and Joe have to go back to the Childrens Hospital at Randwick to get Skyla's autopsy report off her Dr. Finally. We know she had a pulmonary hypotensive episode which caused her to go into cardiac arrest but her Dr wants to go through everything with us and give us the final report. I have known about this since last week and as much as i want to get this over with. Im a bloody mess. I just know i will probably be crying through the whole meeting. I am dreading it. My emotions are all over the place. I will let everyone know how it goes tommorrow and if they found anything that i may not know about. I also have some other news that i will tell you tommorrow once i get back from the hospital. I am hoping my news that i have to share will be good news. Please pray that it is.

Another CDH angel, Baby Gretchen Falhaber, born 12th Nov 2008 passed away 21st Nov 2008 Her CP is BabyGretchenFalhaber Please send some love and support to her family at this sad time.
Another CDH baby born, Johnathen Alexander born 18th Nov and placed on ECMO the following day. Please keep him and his family in your thoughts and prayers.