27/11/07 I rang from my room upstairs at 5am to see how she was. They said she was kind of stable and that she was a bit stiff as they had messed around with her so much that night. She remained pretty unsettled all day. She was very jittery. They thought they were little seizures so they did a EEG and a head ultrasound. They came back normal thank god. So there was no brain damage or anything. She also had to have another blood transfusion and they put in another arterial line. They stared her feeds again. 1ml per hour. Ventilator O2 50, peep 5, rate 30 and pc above peep 15. Morphine down to 20
28/11/07 Still abit twitchy today. They say she was awake most of the night. Wide awake lookin around. So she slept most of the day. Had a few temps today. Highest was 38.2 . Blood cultures that were taken yesterday were so far so good. Lumber puncture showed it wasn't meningitis. Blood gases were really good. They are still not sure what is wrong and might not even be able to find out. up to 2mls of milk at 6am. They are hoping to get to 4 to 5mls of milk by tomorrow so i hope she doesn't vomit otherwise they will have to put in another central line for the TPN and LIPIDS. The central lines increase the chance of infections so im hoping she tolerates her milk. The cardiologist came round to check her out. They said her heart sounds good but they would do a heart echo on her tomorrow or so just to have a better look. Ventilator O2 25, peep 5, rate 10 and pc above peep 15. Morphine down to 10 and milk up to 3mls at 6pm. So far no vomits. The Drs are hoping to take her off the ventilator within 24 to 72 hours. I hope my baby will be ok. She is one tough little girl my little Skyla. Keep fighting darling.