Skyla Manawa Temaipi 13/10/07 - 13/6/08

Skyla Manawa Temaipi 13/10/07 - 13/6/08
Click on pic of Skyla to go to beginning of her life story. Then scroll to bottom of page

Thursday, July 24, 2008

Skyla's Results

Today i rang Skyla's pediatrician to see if her autopsy results were in. He told us the main reason she passed away was from a Severe Pulmonary Hypertension episode which then caused her to go into Acute Heart Failure. He said her Lungs were small but not small enough that they were incompatible with life. Her Lungs showed patches of infections but not from a new infection. They were still healing from her older infections. It showed that she didn't have severe reflux. Her Kidneys were fine but her Liver was very swollen but that would have been caused by her Cardiac Arrest because all her blood was rushing to try and save her brain and heart. We wont get the final report until September i don't think. It will go into alot more detail and we will be having a meeting at the hospital so they will go through everything with us then.
Today i made an appointment to go and see a councillor, don't know how it will go but i guess it couldn't hurt. Last night i really lost it. I was in bed watching TV and i just started bawling my eyes out. I must of cried myself to sleep because next thing i knew it was morning. I wish i could dream about her. Instead i re-live the day over and over and over. The worst day of my life. Friday 13th June 2008.

Prayers need for my friends baby ZAC. He is in ICU where Skyla was. He is a very sick little boy at the moment. He has Wiskott Aldrich Syndrome. He has No immunity and a blood disorder. Today he is meant to be having Heart surgery. Please send some prayers his way. His blog is http://zacruglesswas.blogspot.com There is a link to his site in babies blogs on the right.

4 comments:

Dotty said...

God Bless you. i pray for you. i pray for comfort and peace and healing. i pray the counclor can help you and you can begin to have peace. i pray that Skyla the beauty she is will show you signs and help you. much love, and huge hugs
Dotty
Zachs mommy

Praying for Zac, hope his heart surgery goes well. bless his lil heart. xoxo

Cindy said...

I think of you often and wonder how you are doing. I hope the counseling helps. Like Dotty, I am also sending you lots of hugs.

Fer said...

My prayers are with you.

Elizabeth said...

As a Mom of a CDH Angel for almost 9 years - I can tell you it gets easier. Councling can help - and you are not going through or doing anything unusual. Sometimes you need to just "loose it" to gain a bit of control again.

Be kind to yourself - and remember Skyla is always in your heart. I know it hurts so bad right now. Keep your eyes and heart open and I hope Skyla sends you a sign.

With thoughts and prayers & sending you Cecilia blessings,
Elizabeth