Skyla Manawa Temaipi 13/10/07 - 13/6/08

Skyla Manawa Temaipi 13/10/07 - 13/6/08
Click on pic of Skyla to go to beginning of her life story. Then scroll to bottom of page

Friday, July 18, 2008

Two More Angels In Heaven

The last few days have been tough. Life is just not fair. Two more CDH babies got their angel wings. I was following there stories throughout Skyla's journey. Baby Seth was born a week after Skyla had passed and little Daniel was 7mths. It is so heartbreaking seeing other parents going through what we went through. CDH is devastating. Life wasnt meant to be like this. With all the hard work of researchers, surgeons and critical care teams the mortality rate of CDH only has a survival rate of 50%. I cant wait til the day when there is a major breakthrough and no one has to watch their child go through so much pain and suffering. Some babies do survive this horrible birth defect, but some people including us have to suffer the loss of loosing a baby to CDH.

Baby, Seth Van Dyke, 25/06/08 - 16/07/08
www.caringbridge.org/visit/babyseth

Baby, Daniel Bradley Gallagher, 14/12/07 - 17/07/08
http://333daniel.blogspot.com

They were both two strong little boys, now ^angels^ in heaven with our little angel ^SKYLA^. I hope your having fun with your new friends hunny. We love you and miss you more and more everyday.

1 comment:

Bethany Wurdeman said...

Hello I am Bethany Mommy to Brody born with CDH on 12-14-06. I found your blog and wanted to let you know how BEAUTIFUL Your Angel Skyla is! I am so sorry but I know she is watch over you. She sure does have a Great Big Brother! May God be with you during this tough time.