Skyla Manawa Temaipi 13/10/07 - 13/6/08

Skyla Manawa Temaipi 13/10/07 - 13/6/08
Click on pic of Skyla to go to beginning of her life story. Then scroll to bottom of page

Thursday, January 10, 2008

to the ward and back to ICU again

6/1/08 Skyla made it back to the ward today after spending 6 more days in icu. On sunday 7/1/08 she did it again. At 10pm she aspirated again. From 10pm til about 10:30 she was working really hard but calmed down for 10min or so. Then she vomited and it started again. She was screaming and gasping for breath. It wasnt until about 11:30 until the ICU drs came in. They took her straight to icu. Once there she continued to desat and scream and was working really hard. They put her on bubble cpap. She was fighting it. Her nose was bleeding, her mouth was bleeding because she was so unsettled. The next morning they put her on vpap. She was much more settled with that. Since then she has starting doing bradys and still desating. They are trying to wean her oxygen. She has come down from 2ltrs to .25 of a ltr. We tried her off the vpap today (9/1/08) but she just drops her sats straight away. Tomorrow they are gonna do a contrast study to see where her NJ tube is actually sitting, to make sure its in the right place. I just wish she would keep her sats up. Its been 90 days in hospital today (10/1/08) 65 of them in ICU. Her journey is one hell of a rollercoaster. She goes 1 step forward then 2 steps back. It is so hard. I just wish we can take her home. It wasnt meant to be like this. We should have our baby girl home with us. For her fundo operation she needs to be at least 3.5kg. Skyla now weighs 2.95kg. Hopefully she will start keeping her sats up and off oxygen so we can go back to the ward. A step closer to the door.


Congenital Diaphragmatic Hernia Awareness Research and Support at CHERUBS said...

Keeping Skyla in our prayers!


Anonymous said...

Thinking of you all Kristy ....
love George's granny xo

Anonymous said...

Hi Kristy and Joe,
This has been one tough journey. Hope your gorgeous girl is behaving herself and getting stronger.
Love Alex, Richard, George and Angus