Having a bad day

7/2/08 Well today started out pretty good until 10am. We took Skyla off cpap this morning for her bath. Just as we put her in her bath the blood sisters came to take her blood. She decided to leave a lovely package in the bath so while we refilled the bath they took her blood. It took them 3 attempts. She was screaming. They ended up just doing a heel prick. I cant stand it when they dont get her first go. Anyway after that we gave her a bath. She loved it. She then started to work really hard with her breathing so we had to put her back on cpap. My little girl absolutely hates the mask. She dropped her sats to 65-70. Her pretty pink lips went a horrible colour and she went mottled. I hate seeing her like that, she was gasping for breaths. This lasted for about 30min. She got to the point where she is just so exhausted she just goes to sleep. This happened on 4 occasions today. This would have to be the worst day she has had in a long time. The lowest i seen her sats today was 59%. Her lips were blue. At 4pm the Drs decided we try take her off cpap and just use the nose prongs. This seemed to work. She was really settled and calm. I think she even smiled a bit today. She has never really smiled for us. It has only been with wind. It was really nice to see.