Skyla Manawa Temaipi 13/10/07 - 13/6/08

Skyla Manawa Temaipi 13/10/07 - 13/6/08
Click on pic of Skyla to go to beginning of her life story. Then scroll to bottom of page

Monday, February 4, 2008

Finally a date set for operation

4/2/08 Wow how time has flown. My little girl is now nearly 4mths old. She has come so far in her short little life. We weighed her on Saturday 2nd Feb and she weighed 3.19kg. Over the last 2wks she hasnt put on any weight at all. They decided to up her milk to 21mls per hour and upped her calories to 28. We weighed her today and she is now 3.24kg. The heaviest she has ever been. If she doesnt start putting on weight they will go up to 30cal in a few days. We finally have a date for surgery. Not till the 19th Feb. Its 2 wks away but atleast we finally have a date. She is still having reflux episodes. The other morning she dropped her sats to 54%. Skyla loves scaring us to death. She just gets so upset. She is still on cpap but every now and then they take her mask off to give her little face a break. When its time to go back on she really gets upset and drops her sats. We are still in icu, hopefully we will stay here till after her operation. They expect her to be on the ventilater for up to a week, so then maybe a week after that we will be able to go to the ward. Since she was born we have had 4 ICU admissions and 3 ward admissions. This next surgery will be her 3rd operation. Skyla then will need her coarctation repaired again, her cleft palate and then open heart surgery for her VSD. So 4 more operations including her one on the 19th left for my little princess. She has to be the toughest little girl i have ever known. Im so lucky she is a little fighter.

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