Still having the occasional desat

9/6/08 On the 6/6/08 Skyla was moved to isolation as they thought she had gastric as she was having lots of runny poos. They did a few stool samples but they came back negative. I think its a combination of teething and antibiotics. She was moved back to her old bed space on the 8/6/08 as they were clear. She has still been having the occasional desat and needing bagging. She has had 4 more episodes since the 6/6/08. Sats in the 60s and 70s. They still seem to be with a poo and sometimes with suction. I have been learning to do the trachy tapes everyday and Skyla had been coping well with them but lately she has been going dusky and we are having to turn her oxygen up to anywhere from 30 to 60 and sometimes we have to give her a O2 breath of 100%. When she is settled she is on O2 25%, peep 6, rate 6, and pc above rate 6. It is slowly coming down which is great. You just never know with Skyla. One minute she is great and the next she is needing to be bagged as she totally flips out and has a episode. Its so scary. I just wish all these lung problems can just vanish and for her to be healthy so we can have our baby girl home with us. Skyla wil be 8mths on Friday 13th of June. Thats 8mths my little girl has spent in hospital. Its so not fair. She had her first tummy time session on friday. Her first one in a really long time. She didnt want a bar of it. Absolutely hated it and started crying. On Monday 2nd june her weight was 5.26kg. Thursday 5th june it was 5.1kg. We weighed her today and she weighed an amazing 5.57kg. I couldnt believe it. She had put on so much weight. We did put her milk up from 28mls p/h to 30mls and we increased her calories from 28 to 30. She has been pretty positive with her fluid balance but she doesnt look puffy at all. Her tummy is a bit distended though but i think that has to do with all the wind she has. She definatly takes after her father in that department. HEHEHE. Thanks for your prayers, please keep them coming.

Kristy