Skyla Manawa Temaipi 13/10/07 - 13/6/08

Skyla Manawa Temaipi 13/10/07 - 13/6/08
Click on pic of Skyla to go to beginning of her life story. Then scroll to bottom of page

Saturday, June 14, 2008

Skyla Manawa Temaipi 13/10/07 - 13/6/08

13.6.08 I dont know where to begin or even how to write this. Our beautiful little girl lost her fight today, Friday 13th June 2008 at 10:15am. Today she grew her angel wings and became the perfect angel. She was so strong and so brave. Skyla you were a true fighter hunny bun. You fought and fought right to the very end. Today you were 8mths old to the day. You arrested again darlin and they tried and tried to get you back but it was just too much for your little body to take. They tried for 40minutes honey but it was just too much for you. After that they stopped bagging and resusitation on you and then they gave you to me. You passed away in mummys arms. It was so hard but im just glad that you had your mummy there with you when you got your angel wings. We had 8mths with our beautiful girl. They were the best 8mths of our lives. We were so lucky to have had you in our lives. Mummy, daddy and Blake and all your family and friends will never ever forget you Skyla. You will be in our hearts forever. We loved you so much Skyla. Your at peace now darling. Spread your wings and fly.
I just want to thank everyone for all there love and support through out this. It really meant alot to all of us. thankyou.

I will update again soon with Skylas funeral arrangements once its all set into place.
Kristy, Joe and family


Anonymous said...

Bless your family and your sweet, beautiful baby. You were ALL so brave--it's just not fair. We lost our little angel to CDH at 5 months and we are still recovering many months later. Skyla and Andrew are playing together and they both feel wonderful--happy, active, and free of all the tubes and drugs. We are so, so sorry. Hang in there. Thoughts from a fellow CDH family in California.

Elizabeth Mather said...

I am SO sorry and so sad to read this update. I am praying for you all.

Anonymous said...

Kristy, Joe & Blake,

I just heard the news... what a shock. I'm so so sorry for your loss. My thoughts are with you all today.

Steph Winn (nurse)

Anonymous said...

Im so sorry for loss. Im thinking of you all. skyla was a very special little girl and it was a pleasure to look after her and meet your family for the short time i was at SCH.
Kate Sugrue (nurse C1s)

Gina said...

I don't know where to begin or what to say. Our heart goes out to you. Skyla will always be with you. She is pain free and happy now. We are very sorry for your loss. She was the toughest fighter that I ever knew as well as beautiful. We will always remember her.

Wyatt's Mom

Jennifer & Kenny Miller said...

I'm so terribly sorry to hear of Skyla's passing today. My thoughts and prayers are with you all.

Jen Miller
Sofia's Mommy

Anonymous said...

i am soo very sorry for your loss, that beautiful Skyla was to much for this world, she wasnt ment to be here as God has other plans. i hope you can find comfort in this, as i am so sorry i wish i could hug you. your Skyla touched many people and has made the world better because she was here. She will always be with you. she is FREE now. my heart sank as i read these words, this blog, im all tears as i write this. im here for you if you need anything.
many blessings and hugs
Zach's momma

Anonymous said...


I don't know what to say as I cannot imagine what you are going through. You know I have been thinking about you every day and today I just can't believe your news. I am so so sorry for you and your family's loss. Skyla was such a brave little soul and touched the lives if so many. My heart goes out to all of you
Jody Rodas
(Lachlan, James and Amy's mum from school)

Anonymous said...

Kristy , All our deepest sypathies to you ,Joe and family from Luke , Kerrie , Tyrone , Laura and all the family. We cant begin to imagine how it is for you now but she's finnally at peace and in a better place. Keep your chin up guys !!!! Forever in our hearts. xoxoxo

Anonymous said...

Hi Kristy, its tasha!

Im sorry to hear the bad news...I didnt even get to see the little angel

Hows blake going???

And what about Joe!?

I know she would of been a beautiful baby if you were her mum!

from tasha

Amanda said...

Dear Kristy,
I am so so sorry about your lost. Skyla was such a beautiful baby and a great fighter, she was so amazing about how she held on, but like you said she is in peace and does not have to suffer any more pain and drugs. Bless you and your lovely family, you guys are so amazing about how you guys hung in there day after day and nights. Kristy never ever forget what a great mum you were to Skyla and howyou were there for her. she is an beautiful angel and she will always be looking down on you from above. Like I said I love you guys heaps and my prayers are with you and our deepest sympathy to all of you.

lots of love
Amanda,Siga,Joel,Brendan and Dylan

Jennifer said...

Dear Kristy, Joe & Blake,

I am from Ottawa, Canada, and have been following your blog since the birth of Skyla.
I followed your journey through the many ups and downs.
I would check your blog every day for an update, with hopes that little Skyla would pull through the many obstacles that were thrown her way and to be able to go home where she belongs, and even though I live many, many miles away...and have never met you....your precious little angel has touched my very heart and soul.
I cried when I saw the very sad news.
I am very sorry for your loss, and send you all my deepest heartfelt sympathies.

Anonymous said...

Kristy, I am so very sorry. She was the bravest little girl. I also can't imagine your pain. Skyla was very lucky to have you as a mom. My thought and prayers are w/you and your family. Skyla had a tremendous impact on our lives.
Arlene, (Gina's mom)

Anonymous said...

I have been following your blog since the beginning and was heart broken to log on today and read the awful news! My heart goes out to you and your family.

Much love and compassion.

Danielle Marconi said...

From the above comments you can honestly say your little Skyla brought the world to tears. She also brought us hope, empathy, tolerance and admiration. She's amazing! I used to look at Wyatt's bad days and feel so sad for him and tell all the people who asked about him how grave his situation was. As soon as I found Skyla's page, that changed me. Instead of looking at Wyatt's suffering, I would instead look at the happiness that was in his eyes and appreciate the fight that he was putting up. Skyla always seemed happy and not fazed by her million and one obstacles. She seemed ready to conquer anything! Kristy - thank you for taking us on Skyla's journey. The world would have never known her if you didn't share it.

Maryland, USA

Gillian Brown said...

Kristy & family,
I'm so sorry to hear of your loss today - Skyla was a beautiful little girl and very fortunate to have a mummy like you.She fought so long and so hard,she's at peace now.You have been so strong throughout this emotional roller coaster keep it up.
Our thoughts are with you at this sad time.
Gil & family (Kaden cdh baby's mum)

Sarah Pullen said...

Kristy hun,

Am so incredibly sorry to hear that your beautiful baby girl has passed away. I cant even start to imagine what you and Joe are going through. Everyone of my thoughts and prayers are with you. All my love to you, Joe, Blakey and all your family
Sarah Pullen

shezsta said...

Dear Kristy,Joe and Blake,

Im so,so sorry for the pain you and your family are feeling...though now your baby angel is free of pain.
You are such a good mummy Kristy,and Im here for you and your family ok darl'.


Love Sharon,Bruno,Robert and Natasha.

Anonymous said...

Thinking of you all, It was such a privilege for us on C1south to have met Skyla and her wonderful family.
Lots of Love
- Frances

Betsy Dellinger said...


My heart is heavily burdened for you and your family today. Although I'm sure your loss is completely overwhelming, please know that your beautiful, charming daughter served great purpose in my life. Through Skyla's experience, you were able to offer me great hope when we found we were facing both the CDH and co-arc. When I couldn't find a bright spot in the world, I found it in Skyla. The Lord used you both in my life to allow me to expect healing when everyone else seemed very skeptical. You may not remember, but when you first emailed me, you told me not to worry about the heart surgery "it was no big deal" and that Skyla had done fine with it. I know why Skyla was so able to fight so hard for so long, you inspire great strength in people. I pray now that someone will inspire great strength and courage in you. I wish I had words to give you the kind of peace and comfort you gave me in one of my darkest times, but words don't seem strong enough to even attempt to soothe what is so broken. I believe only the presence of the Holy Spirit can ease such pain, so please know that you will be in my constant prayers. Skyla is free, happy, whole.....perfect. And when you have served your purpose, you'll hold her again.

Anonymous said...

Kristy n joe ,

Troy and i and my family have followed this blog from day 1 ,its the first thing we would check in the morning each day
, Skyla has been an inspiration to troy and i to stay strong and believe that we can take on whatever life throws at us , skyla took on EVERYTHING life threw at her and she was a true fighter, as were you , kristy never in my life have i met have i met a mum so strong.

Skyla was a picture perfect image of what a true angel is, We will continue to pray for both skyla and your family to get through the toughest battle you will have to get through since being blessed with skyla.

thoughts are with you joe and blakey always.

We are a phone call away if you need anything , in anyway we are happy to help.

Be at peace skyla you will be missed more than you know.

Troy & shelley

Anonymous said...

To Kristy, Joe and Blake,
I am so very very sorry to hear about Skyla. I only found out today. I hope you are all doing ok, all of us from CICU are thinking of you.


Anonymous said...

Kristy, Joe and Blake.

Thinking of you all and my love and thoughts are with you.
Love Bek and Jakey Boy xxxx
(sharon's sis)

Anonymous said...

Dear Kristy, Joe and Blake,
I am so very sorry. Beautiful, brave Skyla fought so hard, overcame so many obstacles and touched so many lives. My heart goes out to you.
Much love, Alex

Anonymous said...

Dear Kristy, Joe and Blake and Family.

I have only known you for the last 4 months, but in that time I had the pleasure of meeting you and your family and spending time with you and Skyla.I can only thank you for sharing this part of your life with me. Skyla was the bravest little girl I have ever met. Her smile would light up a room. Your beatuiful little girl might have grown angel wings but she will forever be and live in your heart your soul and your momeries. You have done a wonderful job Kristy Know one could have been a better mum than you, and that is why she choose you for her mum. Everyone here knew how much you loved her and how very much special she was to you and everyone. She touch everyones hearts near and far.
We are so so sorry and our thoughts are with you and your family.
Hospital Buddie Susan and Zac and James and Troy and the rest of the Rugless crew.

Amy AKA "Baba" said...

I am so sorry. You are in my thoughts and prayers. Skyla was an amazing, beautiful girl who will continue being an inspiration to all who learn about her. She has touched many lives.
Amy- Liviana's mom

Anonymous said...

I am so sorry to hear of you devestating loss. I met you briefly in the RMHC parent rooms while my son was in cicu in early april. Your strength inspired me, and you love of your beautiful daughter was so obvious. You are such a great mother, you where there with your beautiful baby whenever she needed you, no matter what hour, or how tired you where. It was never about you, but your beautiful family. I can only hope that I can be half the mother that you are. You and your family are in my thoughts. I am so so sorry. xoxox

Cindy said...

I just popped over to your site to get an update on Skyla and was SHOCKED to see that she had passed away! I am so sorry and am praying for you and your family. She was such a brave girl.

Steph said...

I have been following your blog for some time, always checking to see how Skyla was doing. Even though I never met you or Skyla I feel like I know Skyla for her character shone through in your blog ... she was a true fighter!! I cried to read that she lost her battle.

My heart aches for you at this time of loss and I pray you may receive the strength you need to carry on. I will be thinking of you all.


Sal said...

Kristy, Joe & Blake
We are so sorry to hear about our little baby Skyla, we will all miss her, all our love goes out to all of you. Sorry we couldn't be there for you all. Lilly will miss her little room mate to.
Miss you Love Always
Sal, Lilly, Judi, Daniel & Kaedn.