SKYLA day 6 to day 10

19/10/07 Skylas hernia operation was cancelled to due to an emergency of another little bub. They say it will probably be over the weekend or monday at latest. She had her drain from her operation the other day removed today. She needed some muscle relaxant to do that as they needed to stitch up the hole. They also put a central line near the top of her chest which will make it easier for the drs to give her what drugs she needs during her operation. Had her daily xray. Drs say her left lung still looks pretty good. Daddy got to clean her eyes and put drops in, i got the nappy change. (surprise surprise). No more sunbaking for my little princess. They took the lights off her today.

20/10/07 We come down early to see Skyla this morning. They had to up her morphine as she was very restless over night. Other than that she had a pretty good night. OPERATION TOMORROW @ 12PM unless an emergency turns up. I got to clean her eyes today and put lip moisturiser on her beautiful little lips. weaned her oxygen down again. Slowly getting there.

21/10/07 OPERATION DAY. I had the worst sleep that night, i am so scared for my little girl. I couldnt stop crying all morning. My little princess went off at about 12:45 for her operation. The drs said it would take about 2-3 hours but the actual op would take about 45min to 1 hour. Most of the time is spent setting up and getting her organised. We waited in the waitng room. It felt like it took forever. Finally the dr came in to tell us everything went well. They did have to put a patch in as the hole was a very big one. She had stomach, small and large intestines, spleen and liver all up where her left lung would be. I was surprised by how everything was there but the fact that she has so much left lung is amazing. My little girl had done so well. Im so proud of her. The drs did say to expect some downers as they normally can get pretty sick after this kind of operation.

22/10/07 Skyla did really well after her operation. They even weaned her oxygen down again. My little girl is amazing. She is my fighting princess. Her blood gases were good again. She was wide awake today, kicking her legs and throwing her arms. She doesnt like to be touched much, she gets really angry and all her machines start beeping but then she settles and everything is fine.

23/10/07 This morning when i saw Skyla her nurse said that they had weaned her nitric down from 6ppm to 3ppm. Hopefully tomorrow she will be off that machine and taking a similar med orally. Skyla started taking my breast milk today through the nasal tube. 1ml per hour. After 8 hours she had tolerated it really well so they upped it to 2mls. As long as she tolerates it they will keep upping it. They weighed her today, 1750gm. so she has put on about 40gm. Atleast she didnt loose any. Not like there is much to loose anyways. She is tiny. They also weaned her oxygen down from 30 to 28 and her breaths per minute from 50 to 40. The drs are very happy with her.