Skyla's Here

Well our beautiful little girl made her entrance into the world via emergency c-section on 13/10/07 at 308am weighing 1.7kg, 46cm long and 6wks premmy. The reason i had to have emergency c-section was because i hadnt felt her move for nearly 24hrs. She was immediately intubated and put on a ventilator. Daddy says she had her eyes wide open, legs kicking and trying to fight off the Drs. Thats our little girl alright. She is our little fighter. I didnt get to see my beautiful lil girl until about 2 30pm as i was recovering from my c-section.

14/10/07 Today she had
chest xrays we were told that not only did she have the diaphragmatic hernia and the vsd, which we already new about but Skyla also has a coarctation of the aorta which requires surgery on her heart prior to the hernia operation. although that meant bad news for her, the good news is that Skyla has alot more of her left lung than the Drs antisipated which is fantastic. She has been doing really well. Skyla has been stable, even trying to breath on her own. Going by her chest xrays, it just appears to be intestines and a little bit of stomach up in her chest. We are then told our little girl will have her heart surgery on 16/10/07 at only 3 days.

16/10/07 I come down early to see Skyla before she heads off for surgery. I got to clean her eyes and change her gorgous little bottom for the first time. It is so so hard not being able to hold our precious little princess.. She is so beautiful. Dad (Joe) just makes it in time to see her before she heads off for her first battle. I was a mess, its so hard to see such a little baby on her way for heart surgery. It was the longest couple of hours of my life. At 11 30 we get the call that she is on her way back to CICU and that everything went great. Skyla is stable, they even weaned her oxygen down. She come back with a chest tube in to drain the fluid. She even got strawberry shortcake band aids over where the incision was made.

17/10/07 I come down early in the morning at about 6 20am to find Skyla open her eyes for her mummy for the first time. They were so beautiful, i couldnt help my self but to burst into tears. Happy tears of course. Sian her nurse said that she had down well over night. She did need a little blood transfusion but she said that that is normal after heart surgery, other than that she was doing really well. Later on that night they noticed she was looking a little jaundise so she was placed under the lights. Later on that night we had a visit from Alex Baby George's mum. George is still up in the ward but doing well. It was great to finally meet her as i had been following there journey with CDH. I was discharged from hospital yesterday but as i dont want to leave her they have given me a room two levels above my little girl which is great. Only a short walk from her.

18/10/07 Today i come down early again to see my little girl under the lights with her sunnies on. (working on her tan already) As tomorrow will be her hernia repair operation they will take out her central line which has been stitched into her belly button will be removed. Later on this afternoon some time they will give her some muscle relaxant so they can put in another central line just near her neck i think so it will be ready for tomorrow. Please pray for my little girl for her next big operation. I will try to keep you all updated as much as i can as i am staying at the hospital. I ducked home today to grab some things and thought i better update it as some people dont even know i have had my beautiful little girl. I will add some photos soon too. Thanks for all your thoughts and prayers. Our little girl is doing really well.

Kristy and Joe