Skyla Manawa Temaipi 13/10/07 - 13/6/08

Skyla Manawa Temaipi 13/10/07 - 13/6/08
Click on pic of Skyla to go to beginning of her life story. Then scroll to bottom of page

Friday, April 11, 2008

The Ward, and no right clavical bone (collarbone), More desats

8/4/08 Today we went to the ward as she is doing really well. No desats or anything, it was great. I also found out today that she has no right side clavicle bone. Its the right side of her collarbone. After all her xrays (over 115 mind due and 6mths later) they finally realized she didnt have that bone. They dont seem to know what this means. Whether she will be able to crawl or not as it gives her arms the strength. So i guess we will just have to wait and see. She does use her arm but i did notice that she does use her left arm more.
11/4/08 She had been doing really well until today. She started doing her gagging again. She had 3 episodes of desats today. Went mottled and dusky. At one stage we couldnt even pick up her sats on the monitor as she had shut down abit. The first 2 went for 30-35min and the last one went for 25min. They called ICU in on her again but by the time they came in she was ok again. If she does it again im pretty sure we will head back to ICU. Skyla had a abdominal and chest xray today too. They said her lungs are still the same, (crappy) but the also noticed a small mass. They are not sure what it is. They think its either a clot or maybe a gallstone. They are not sure but will be looking into it. I just hope its not a tumor or something like that. They will prob do a ultrasound on her belly tomorrow hopefully. Like I've said before, its one thing after another. I just hope no other mysterious things pop up on her. The Drs are even scared of her as they dont know whats gonna pop up next. Please baby girl, NO More please. The photo above shows no right clavicle. Skyla and her big brother Blake and 2 pics of our little fighter Skyla.

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