Skyla Manawa Temaipi 13/10/07 - 13/6/08

Skyla Manawa Temaipi 13/10/07 - 13/6/08
Click on pic of Skyla to go to beginning of her life story. Then scroll to bottom of page

Friday, May 9, 2008

GO SKYLA GO!!!!!!!!

The 1st pic is when her left lung collapsed after trachy change. You cant even really see it at all. The 2nd one is about 15hrs later. As you can see her lungs are pretty crappy. Alot of scar tissue. Atleast her lungs can improve in time, well at least until she is about 8yrs old




9/5/08 Yesterday afternoon Skyla had a head ultrasound and a liver ultrasound. This showed that her liver is a bit damaged from the arrest but the Drs have started her on some medication to help it to recover. They are hoping it will only take days to a few weeks. They also found on her head ultrasound that her ventricles are dilated a bit. They will look at her old ultrasounds to see if there is much difference and they also said there is a small collection of something on top of the brain at the front. They wont really know much more until she really wakes up and we see how she is. Im sure that they will do a head ct scan once she is more stable. I just hope there is no permanent damage done. Yesterday afternoon they also did her first trachy change in ICU. It went ok but her left lung did collapse as they did it. They have since given her some physio and she is laying with her left side up. After her trachy change they stopped the muscle relaxant so that she could wake up. It took about 1 hour for her to wake up. It was so good to see her eyes again. The only problem we are having with her at the moment is her heart rate. It is sitting so low. Its ranging from 90-60. It has hit 59 once. They gave her some meds to speed it up a bit but it didnt last long. The drs dont seem really worried as her sats and her BP have been very stable so it isnt compromising anything else. Its still very scary though. I dont like it when its that low . She went back to sleep cause she is still on alot of sedation. I went off to bed last night at 10pm. I rang a few times through the night and they said she was really good. I was so happy. I came back down this morning and they told me she has been wide awake, alert and even following the nurse with her eyes. That is a great sign. And in true Skyla style, she even managed to disconnect herself from the ventilator and grab hold of her peg. My Skyla is amazing. I just hope and pray that things will keep on improving from here on out. I just want to thank everyone for all their love and support for Skyla and our family. It sure seems like it is working. We just have to keep it up and for Skyla to keep on fighting. The Drs have said that we aren't out of danger yet but things are certainly looking alot better.

Love Kristy, Joe, Blake and our little fighter SKYLA

6 comments:

Gina said...

Yeah!! The prayers are working!! She is a fighter and everybody that I know is thinking about her!!

Kendall said...

Keeping you in my prayers!

Vicki Jensen said...

Prayers are still coming. Keep fighting hard Skyla!!!
Vicki Jensen

amanda mani said...

To beautiful Skyla,
I am so pleased to see and hear that you are doing so much better. I told your mum that you are a fighter. I will continue to pray for you. You are such a beautiful little girl. Kristy my best friend I will continue to pray for you and your lovely family. I am here for you always.

love Amanda and family

AMANDA said...

I LOVE YOU SKYLA AND KRISTY TOO

LOVE AMANDA

kay wray said...

Hi Kristy, its Aunty Kay, Skyla looks beautiful and she certainly is a brave little girl and you are a wonderful mum, love you both, Aunt K. xx