Skyla Manawa Temaipi 13/10/07 - 13/6/08

Skyla Manawa Temaipi 13/10/07 - 13/6/08
Click on pic of Skyla to go to beginning of her life story. Then scroll to bottom of page

Thursday, May 1, 2008


1/5/08 From 430am to 12 30pm today Skyla has been wide awake and thrashing around all over the place. They upped her morphine from 20 to 50 and her midaz from 2 to 5 but it seemed to do absolutly nothing to calm her. She is immune to everything. At 1 30pm today Skyla headed off to theatres for her trachy. I was so scared as this will be her 5th general anesthetic in 6mths. Her last one she went blue 4 times in theatre, so you can see why i was scared. They told me it would last 1 to 2hrs. The nurse came up to me at 215pm and said she was already ready to be picked up. They said she was fine and it went well. That was the best news i had all day. My baby was ok. We headed straight down to get her from theatres. We could finally see her face. No more tubes, nose prong oxygen, masks or anything. Just her pretty little face. Once back in ICU i had to wait about 20min or so until i could go in to see her. They had to fix her up a bit before we could come in. It didnt look as bad or scary as i thought the trachy would be. Im still very nervous about it as having a trachy will now mean she needs 24hr care. Thats even when we finally get to take her home. I know its not forever. Just a year or 2 as long as things go the right way, then she can go on to live a normal life without it. It could even be sooner rather than later. At least she now has a permanent airway, so if she does get sick once off the vent, all we have to do is hook her up to the vent again and there is no hassles of having to intubate her all the time as the airway is already there right away. Other people have told me that this is probably the best thing for her. She wont burn up all her calories just on breathing. She can gain more weight and get stronger which gives her lungs the best possible chance to improve which is what we want.


Anonymous said...

isnt she a beauty! i hope things improve from here on out! keep on fighting Skyla keep on fighting, you such a strong and beautiful girl! xoxox
zach's mommy

Gina said...

Skyla looks the most peaceful with her trach. We are wishing the best for her and I bet she is going to thrive from here on out!!

Wyatt's Mom

Cindy said...

I agree, she does look more peaceful with the trach. Hopefully this will make breathing and weight gain a lot easier for her. I don't blame you for being nervous about taking care of the trach, but am sure you will do great once you get used to it.