The Countdown Is On, A little scare and a NAME!!

Wow, i am getting so close to meeting my little man. Only 9 more sleeps. I am booked for c-section on the 7th May. We have also decided on a name. His name will be

JAI KEWA TEMAIPI

The 7th May also marks 1 year from when SKYLA had 3 cardiac arrests in 24hrs. They told me that day she wouldnt survive the night. I really tried to not have him this day but i didnt have any other choice but too. Or unless i wanted to have him on the 14th May. That would have made me nearly 41wks and there was no way i was going to go over. I am anxious enough as it is. So now that i am booked for the 7th, as hard as it is going to be i will try and make a happy day out of a sad. He may even decide to come on his own in the meantime. I guess i am going to be very emotional no matter when i have him anyways, Not having my little girl here with us. I miss her so so much. It is still so hard. I love you SKYLA and miss ya bubba but i know you are looking out for your little brother. Thanks darlin.

I had a little scare yesterday. I woke up at 430am and couldnt go back to sleep. At about 830am i was starting to worry as i didnt think i had felt him move. I got myself worked up so i rang the hospital. They told me to come in so they could put the monitor on him. After about 30min of monitoring him they werent really happy with it as they didnt see any spike in his heartrate and i still wasnt really feeling any movements. His heartbeat was fine though. They gave me some apple juice and got me to lay on my side. After that he decided to put on a performance and they were happy with what they saw. Cheeky little bugger he is already. Also too i have been really stressing out lately as it is getting close. I guess its only normal after loosing my beautiful girl. I wonder at times if its all in my head. I just want little Jai out now and safe in my arms. I cant wait to meet him. Anyways after he put on a little show they sent me home which was great. They gave me a kick chart so i can keep track of his movements.

On thursday 30th i have my next checkup and then Friday i have my pre-admission appointment. I will let you all know how it goes.

A Parcel In The Post

I just wanted to say thankyou to Gil, Kaden Brown's mum. Kaden is a CDH survivor from Scotland. Click here to view his blog. Kaden was born in July 07. We have followed each others journey with CDH and kept in touch through our blogs and emails. Well the other day i recieved a parcel in the mail. It was a gorgous outfit and bib for my little man to be. Thankyou so much GIL. I love it. I will try post some pics soon.

PS, Gil should have had her new baby yesterday. Gil was booked in for a C-Section. I cant wait to see some pictures of your new little man. Hope all is well with mum and bub.

Baby Shower

On April 5th, my mum and sister Tash put on a baby shower for me. I was a bit nervous bout having one cause i was worried it would bring up memories of Skyla. Im so glad i had it though cause i ended up having a really great day. Thanks so much mum and Tash. I only cried once before everyone got there cause silly me brought up my beautiful princess. I hid it from them though. Well i dont think they new i cried. Oh well i guess they will know now. There was about 14 of us there. We played a few games and ate some great food. I got so many lovely presents. This time all blue. Thankyou so much to everyone for my presents and i hope you all had a great day. I know i shore did. Now all i need is my new little man. I cant wait. Just about 4weeks to go. I am still waiting on Tash to email me the photos so i can add them to this post. Check back later. Lots of photos coming. Thanks again mum and Tash for giving me a fantastic day. xxx

Blake's 9th Birthday

On March 28th it was Blake's 9th Birthday. We went out for dinner at our local RSL and after that was a school Bingo night fundraiser at the RSL. It was a good night. Blake won the lucky door prize, 2 games of bingo. I won 2 and my mum won 3. You could say that we cleaned up, lol. Towards the end we were too embarressed to say bingo cause we kept winning all the time. On the 29th which was a sunday, Blake had his birthday party at Bowling. He had invited 9 of his best mates. He had a great time. They played 2 games, then had hotdogs, nuggets, chips, drinks then ice cream. Although he didnt win, he had a great day and got lots of lovely presents. By the time it was over i just wanted to go home and sleep. I was exhausted. Im so glad i didnt have to clean up. But i guess that happens when your 34weeks pregnant.

HAPPY BIRTHDAY BLAKE!!!!

LOVE MUM

PS. As you can see by the new heading of my blog, i have decided to just continue on with this blog. You can still read my beautiful girl's story by clicking on her picture at the top. I will no longer use my other blog.

4D pics of my little guy

My little guy 30wks 5 days
Skyla at 30wks 4days. I think her little brother is gonna look alot like her.

Today i had my checkup. Everything went well. They were gonna book me in for a scan at my next appointment but they were able to fit me in today. I was happy, i got to see my little boy for the 2nd time. Boy he looks just like Skyla. He weighs in at 1574gms and is growing great. The only worry i now have is that during the scan the cord was right in his face. Too close to his neck for my liking. Other than that he is perfect and is gonna stay that way.

Blake and Roxy

Our new edition to our family

No i havent had bubby yet, about 10wks for my little boy to go, but i did get another baby. Blake got a 6wk old puppy. We were given her from our ex neighbors. Thanks guys. Me and Blake absolutly love her. Blake named her Roxy. She is a Golden Retriever. She is beautiful. She is huge!!! She weighs in at 5.9kg already. We got her yesterday. Today i took her to the vets for her 6wk needle. She even fell asleep whilst the vet gave her her needle. I will upload some photos of Blake and Roxy soon. I may even put one up of my pregnant belly. Well, we will see bout that one.

Update

Hi everyone, i know its been a while since i updated. Its just hard writing on Skyla's blog. We had a fetal echo on the babies heart and our cardiologist told me that he is a boring baby. Boring to me is fantastic!! Means i have a healthy baby with a healthy heart. That made my day. Thankyou to everyone who voted on the names poll. But we still havent decided on a name. I do have it down to 3 though, only 1 from the list. I think now it will be out of LUCA, KYNAN or JAI. Maybe we will just wait til he is born then pic which one suits best. Its so hard deciding on a name. I have my next check up on thursday 5th Feb. Not sure if i am having another scan but i am having the Glucose test thing. I am hoping to discuss whether or not i can have a c section too. Thats what i really want anyways. If i have the c-section they will have to take me a week earlier i think. I am due May 9th. Mothers day is May 10th. I really want to be out of hospital by mothers day. Last mothers day i had my baby girl with me and we were in hospital. This mothers day i dont want to be in hospital, i want my little boy with me and Blake. We will go and see our Angel at her resting place.

February 13th is fast approaching. It will mean that my sweet baby girl has been gone 8ths. I lost my baby girl on Friday the 13th. Skyla was 8mths old to the day. Now on her 8mth anniversary its bloody friday the 13th again. I hate this day. Next month is also friday the 13th. I cant escape them. Then i have Valentines Day Feb 14th, my baby will have been dead longer than she was alive. 8ths and 1 day. It hurts so much. Im a bawling mess typing this. I cant hardly see through all my tears.

I miss you so much baby girl. The day you died, part of me died too. I wish i could hold you in my arms again, kiss your beautiful face. I would never let you go Skyla. I love you baby girl and miss you so much. Love mummy xoxoxox

What Name do you like best?

Just after everyones opinion on a few names i like. Not saying we will pick one of these as something else may come up. Out of them, there is one name that i really really like. Not saying which one though. There is a poll on the right. Please vote if you can. Thanks

Our little boy sent from our beautiful angel SKYLA

Hi everyone, well i had my 18wk Morph scan today and everything is fantastic. They got a good look at his heart and all looks good. The sub chorionic hemorrhage that i had seems to have disappeared which is a big relief. They checked to see if he had 2 collarbones, i know that sounds weird but Skyla only had 1. Well he has 2. And no CDH!!! I am so happy. They also did some 3D pics of our little guy today. I ended up taking a photo of them with my phone. I am only 18wks 5days but the 3D pics turned out pretty good considering how early i am. There is two pictures of his face and an awsome one of him kneeling. It looks really cool, oh and a picture just to prove he really is a boy. LOL. They also cancelled the fetal echo that was planned for tuesday 16th Dec and made an appointment for Jan 20th, i will be 24wks by then so the cardiologist should be able to get a good look then but as far as they were concerned today, everything is perfect. Yay.

The closer it is getting to christmas the harder it seems to be getting. I am really missing my baby girl so much. Next Monday is my birthday too. Last year i had my little girl here with me and she was doing so well. We were at the ward and she wasnt even on any oxygen. We were thinking we were going home. God how i miss her so much. We love you Skyla. Thankyou for looking out for your little brother. I cant Wait til he is older so i can tell him all about his beautiful big sister SKYLA. What a brave girl you were and how strong you were. He will be so proud. We all are. Miss you bubba and we love you so much. Keep looking out for us up there. Cant wait til i see you again. Love mummy. xoxo

A Star In The Sky

Just after we lost our beautiful girl, 2 of my best friends got us a gift. They told me and Joe about it the day we buried Skyla. It is her very own Star In The Sky. Here are the co-ordinates.

SKYLA MANAWA TEMAIPI,
Libra RA 15h 18m 38s D-13' 59'

Thankyou so much Jenni and Marissa

27TH November- A Big Day

Today was a really big day for us, and a hard one at that. We met with Skyla's Dr and social worker at 1pm to get her autopsy report. It was still Pulmonary Hypotension episode which caused her to arrest. Although they didnt find a syndrome or genetic problem they still think she did have one but just couldnt put a name to it.
Now onto our news. We are having a BABY!!!!! And a healthy one at that. We had a scan today. I am 16wks 5days. I am due May 9th which is one day before Mothers Day. The stomach and everything is exactly where it should be. Yay no CDH. I am so happy. They still have to check the heart out in more detail but so far everything looks great. Now onto the sex, GIRL or BOY. I asked them and they are 90% sure we are having a BOY!!!!!!!!!! Now all we have to do is come up with a name for our little man. I told Blake today that he is getting a little brother. He was happy but i know he really wanted a sister. The first thing he asked me was "Is he Healthy". Thats all we want. Then he gave me the biggest kiss and cuddle. I knew the baby had to be healthy especially with a big sister in heaven watching over us all. Thanks Skyla, we love you and miss you so much bubba. Thankyou for sending mummy, daddy and Blake a healthy bubby. We love you.God how i wish our little girl was still here to make our family complete. As the days pass, it doesnt get any easier. I miss her so much. Having a new bubby on the way is never gonna replace our little girl. I hope it does help to ease our pain a little.

Back at Sydney Childrens Hospital

Tommorrow me and Joe have to go back to the Childrens Hospital at Randwick to get Skyla's autopsy report off her Dr. Finally. We know she had a pulmonary hypotensive episode which caused her to go into cardiac arrest but her Dr wants to go through everything with us and give us the final report. I have known about this since last week and as much as i want to get this over with. Im a bloody mess. I just know i will probably be crying through the whole meeting. I am dreading it. My emotions are all over the place. I will let everyone know how it goes tommorrow and if they found anything that i may not know about. I also have some other news that i will tell you tommorrow once i get back from the hospital. I am hoping my news that i have to share will be good news. Please pray that it is.

Another CDH angel, Baby Gretchen Falhaber, born 12th Nov 2008 passed away 21st Nov 2008 Her CP is BabyGretchenFalhaber Please send some love and support to her family at this sad time.
Another CDH baby born, Johnathen Alexander born 18th Nov and placed on ECMO the following day. Please keep him and his family in your thoughts and prayers.

Heaven gets another Beautiful Angel

Reese Renee Kostjuk30/10/07 - 30/10/08
Heaven recieved another beautiful Angel on 30th October 2008 at 3pm
Reese was taken to heaven on her first birthday. Born on 30th October 07 with CDH. Spent her whole life in hosptial. A fighter til the end. Please pray for her beautiful family at this sad time.

Blake is doing the Guard Of Honour for the Rugby League World Cup Australia vs New Zealand game

Just a quick note, i have some exciting news about Blake. Tonight is the opening ceremony of the Rugby League World Cup and Blake's rugby league team has been chosen to be in the Guard of Honour for the Australia vs New Zealand game. We are so excited. What an honour. I will try to take lots of photos and update whan i can. Dont know if they will show him on the TV but he will be wearing his Hurstville United clothes which are blue and white. Photos to come. Keep a look out for him. Im sure Blake's little sister will be looking down and will be so proud of her big brother.