To the Ward and back to CICU again. INTUBATED AGAIN

26/11/01 Skyla was having a really good morning. We were set to go to the ward at 430pm. At about 2pm she started having a few bradys (her heart rate and sats would drop right down). They continued and the Drs said she would still be ok on the ward as they weren't real bad ones. I was a bit worried but we still went. We finally got to the ward about 430pm and she started doing them every minute or so. Over the next hour or so she would of had close to 30 bradys. The nurse couldn't attend to her patients as she was unable to leave skyla. We phoned CICU and they said we can come back but not for about 40min or so. I was very glad to be going back as i was really worried about Skyla. We got back there (cicu) and they came more frequent and were getting longer and longer. She would stop breathing for nearly 20seconds at a time. They tried giving her a dose of caffeine as it is good for apnea in little babies. In the end they thought it best the intubate her again. So my little princess is back on the ventilator again. They think its another infection. So she is back on morphine and midazalum again. They then did a lumber puncture. They got the results for that and there was something there. It was a contaminated tap (had some blood in it) so they thought it best they start treating her for meningitis, just in case. The definate result wont be back for 48hrs. To be safe they started her on 3 doses of antibiotics to cover a range of things. They think she is septic. So she is on Cefotaxime, metronidazole and vancomycin (not sure of spelling). They also took out her pic line in case the infection was from that. Ventilator O2 30, peep 5, rate 30 and pc above peep 15. Morphine on 30

27/11/07 I rang from my room upstairs at 5am to see how she was. They said she was kind of stable and that she was a bit stiff as they had messed around with her so much that night. She remained pretty unsettled all day. She was very jittery. They thought they were little seizures so they did a EEG and a head ultrasound. They came back normal thank god. So there was no brain damage or anything. She also had to have another blood transfusion and they put in another arterial line. They stared her feeds again. 1ml per hour. Ventilator O2 50, peep 5, rate 30 and pc above peep 15. Morphine down to 20

28/11/07 Still abit twitchy today. They say she was awake most of the night. Wide awake lookin around. So she slept most of the day. Had a few temps today. Highest was 38.2 . Blood cultures that were taken yesterday were so far so good. Lumber puncture showed it wasn't meningitis. Blood gases were really good. They are still not sure what is wrong and might not even be able to find out. up to 2mls of milk at 6am. They are hoping to get to 4 to 5mls of milk by tomorrow so i hope she doesn't vomit otherwise they will have to put in another central line for the TPN and LIPIDS. The central lines increase the chance of infections so im hoping she tolerates her milk. The cardiologist came round to check her out. They said her heart sounds good but they would do a heart echo on her tomorrow or so just to have a better look. Ventilator O2 25, peep 5, rate 10 and pc above peep 15. Morphine down to 10 and milk up to 3mls at 6pm. So far no vomits. The Drs are hoping to take her off the ventilator within 24 to 72 hours. I hope my baby will be ok. She is one tough little girl my little Skyla. Keep fighting darling.